Sunday, February 27, 2011

Fragility

Aidan was evaluated in January by a psychologist and she also interviewed us a month before that. In combination with that, and the other evaluation he had two years ago and all the tests/reports from teachers/therapists etc the results are he isnt "autistic enough" to be labeled with Autism. Basically he is a very sweet, caring, and social boy who makes verbal and eye contact with everyone so that wont have enough of a big impact on his socialization and life to be labeled autistic. - More on that at the end. He needs to be treated as a child with Fragile X Syndrome which indicates he has delays in communication, speech, and language.

His i.q. is 41. He is Moderately mentally challenged on the levels of : Mild, Moderate, Profound, and Severe. His mind is that of a 2 1/2 year old. The recommendation for progression is one on one care in school, at home, and at therapy. Problem with that is the integrated school he goes to is a giant piece of shit and we dont think there is an aid with him while he is there a lot of the time when it's crucial he needs this otherwise he is just flapping his arms and going around in circles with overload. He needs direction and a small classroom so the good news to that is, he has been accepted to a school (for the fall) that specializes in developmentally disabled kids. The classroom has a maximum of 8 kids so he will get the aid and attention he needs. So now that we have a foundation to work from the actual work starts.

I'm indifferent about this simply because of the fact we've been told he was Autistic for 3 years now and now they are saying basically; "yeah well pretend that never happened." So I need to ignore what has been shoved down my throat and know that he is just moderately mentally challenged which is a great thing but it's a transition. Also we will continue to argue with the school and pay visits to them making sure he has an aid there. It's maddening how broken the school systems are and they only really care about money.

Aside from that it's a productive and new day. He can only go up from here and I couldnt be more thrilled. I have some personal thoughts that i'm going to keep to myself but clarity has been achieved and it feels like we've broken through the proverbial brick wall.




My sweet little bundle of joy.

2 comments:

  1. My thoughts and hopes are with you in caring for your boy! Good luck in these trying times. It's sad that education lacks the importance it deserves. Your son is lucky to have someone as caring and loving as you to look after him.
    All my best,
    Bear

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