Thursday, December 11, 2008

Tears of Joy

is what I cried today in the doctor's office with Shaun and his mother to talk about what is "wrong" with Aidan. At 3 1/2, along with Fragile X Syndrome, Pervasive Developmental Disorder is what he's been diagnosed with. He doesnt have Autism but traits of Autism not even really strong enough to be on a spectrum or Aspergers. He has rituals with spinning/swinging, no language, and difficulty with socializing. Though he is very social he just isnt as social as he should be and has difficulty with doing things "normally". The doctor disagreed with the psychologist on saying he is Autism-Spectrum due to his very social behavior and he only has a few traits of Autism and that is directly related to Fragile X. He may even grow past these "autistic traits." Which is what i've thought the entire time but I never wanted to get my hopes up. It's hard being optimistic with this.

This is a very very good thing. With us, the school, and his speech therapists help he will progress and never regress. He's almost normal in other areas except language. He rates with a 16 month old in that regaurd but he is babbling more and wanting to say things...

But the best news is he will speak. My son will talk. I have dreams about him saying words and in my dream I run and hug him and kiss him. My dream will come true soon. I am the happiest mother in the world right now and i cant stop smiling and crying.

I love my special little guy.

Me and my world.


  1. See, I warned you..

    That's what you get for never giving up :)

  2. Sarah,
    This is such fantastic news... I am so happy for you and Aidan! You are a wonderful mother... never give up hope. :)

  3. You sound like a great mother, Sarah. And with your love - I am sure Aidan will be a happy person. With your patience and love he must be just fine.

    It was great to hear this. Good for you, guys!

  4. God I love that little man... and the way he can make you smile!

    It's a different smile then I see any other time. It's the most beautiful one. :)

    I can't wait to come visit and see him again... and I have to say I've never had any doubt he would exceed all expectations.

    He IS his mother's son after all!

    xo. I love you. You make my world livable sometimes.

  5. My kiddos have the fxs with that autistic traits. They are just amazing and awe inspiring. Many see the dx as a tragedy but compared to the alternative, i too, feel incredibly blessed. They are the most loving, sweet and gentle kids I have ever had the opportunity to meet :)

  6. Thank you all for the support and showing you care. It means a lot to me.

    Mel, you're the most wonderful best friend i've ever had. I love you.

    And to the mother with Fragile X children, know you have support and that life is too short to analyze what normal is. Normal is overrated anyway. :)


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